Charlie Gard granted United States citizenship to fly for treatment

Two international experts to attend meeting in Charlie Gard case

Connie Yates and Chris Gard, parents of 11-month-old Charlie Gard, were furious after learning that the lawyer appointed by the British government to represent their son in court heads a charity that supports euthanasia.

He added that if the hospital did change its mind to allow the baby to go, he would be "bound to agree".

Dr. Michio Hirano, a neurologist at Columbia University Medical Center in NY who specializes in myopathies and other neuromuscular diseases, has developed an experimental therapy that has been used on at least one American patient. In the United Kingdom, police could call upon the Powers of Protection law to arrest Charlie's parents if doctors believe parents could cause pain to a child by removing them from a hospital's custody.

Tragic Charlie was born with mitochondrial DNA depletion syndrome, a rare and debilitating genetic condition that leaves sufferers severe mental and physical. Dr Hirano flew back to NY last night. We are at his bedside and feel satisfied he is not suffering or in any pain.

"As Charlie's loving parents, we are doing the right thing for our son in exploring all treatment options".

Dr Hirano's research focuses on mitochondrial diseases and genetic myopathies and he has treated others with conditions similar to Charlie's. Republican lawmakers have shown signs that they will do all they can to help Charlie over the past two weeks, including Reps.

Don't worry, though, these parents are not about to give up. And don't forget, a USA hospital has offered to spare the family the ordeal of traveling by bringing the experimental drug to London so that Charlie can be treated there.

The medical evidence under consideration at the hearing came from Hirano, who has offered nucleoside treatment more generally in the past, and who testified in this instance via live video.

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The therapy has never been tested on any human or animal.

Ahead of the meeting, Great Ormond Street said Ms Yates' contribution would be welcome and would be supported by the chair who could introduce her questions and ensure adequate time is offered to respond. United Kingdom courts and the European Court of Human Rights initially supported hospital officials. They could decide if he is fit to undergo experimental treatment on his brain condition.

She said she does not want her son to suffer.

The results of Charlie's brain scan will contribute to an assessment of whether or not any brain damage has occurred.

"Parents have the most at stake when it comes to standing up for their children and right now, we have an incredible opportunity to stand with a family and save a child's life", Herrera Beutler said in a statement.

He is due to stage further hearings later this month following this week's specialist gathering.

But Mr Justice Francis said the effect of the various rulings meant the court's permission was required.

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